Day 28
Great news, she slept all night on the T piece did not have to get changed back to ventilator on CPAP mode. She was cutting up with the nurse and…
Day 26
Phoebe is wide awake and doing much better, frustrated with my inability to read lips. On CPAP mode on ventilator now so, basically breathing on her own without oxygen, is…
Day 25
Who knows what today will bring, too many questions remain and I have to figure out what options work with our health insurance. I spoke with Phoebe's nurse and she…
Day 24
Around midnight Phoebe managed to pull off one of her mittens and extubated herself. When she was given the option of BPAP machine or reintubation she agreed to the intubation.…
Day 23
Phoebe is resting well, on sedation so she can not pull the tubes out. She will be having surgery tomorrow for a Tracheotomy and a feeding tube to her stomach…
Day 22
The day really started as a continuance of yesterday, Phoebe was anxious, demanding to go home and we spent most of the night arguing back and forth about how she…
Day 21
2 days in emergency rooms, 19 days in ICU, 17 days on a ventilator, 1 day off of ventilator. So we have made good progress, swallow test went well this…
Day 20
So far today Phoebe has had a positive Spontaneous Breathing Test, cuff test was not great but they decided to go ahead and extubate, then a breathing treatment of Racine…
Day 19 1.5
Well the test went poorly, Phoebe was struggling to breathe and when they did an airway test (the tube has an inflatable cuff that expands to provide a seal) they…
Day 19
Praying for a good day today, they will be turning off her sedative this morning and switching to CPAP mode for spontaneous breathing test. If that works they will make…