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Who knows what today will bring, too many questions remain and I have to figure out what options work with our health insurance. I spoke with Phoebe's nurse and she…

Around midnight Phoebe managed to pull off one of her mittens and extubated herself. When she was given the option of BPAP machine or reintubation she agreed to the intubation.…

Phoebe is resting well, on sedation so she can not pull the tubes out. She will be having surgery tomorrow for a Tracheotomy and a feeding tube to her stomach…

The day really started as a continuance of yesterday, Phoebe was anxious, demanding to go home and we spent most of the night arguing back and forth about how she…

2 days in emergency rooms, 19 days in ICU, 17 days on a ventilator, 1 day off of ventilator. So we have made good progress, swallow test went well this…

So far today Phoebe has had a positive Spontaneous Breathing Test, cuff test was not great but they decided to go ahead and extubate, then a breathing treatment of Racine…

Well the test went poorly, Phoebe was struggling to breathe and when they did an airway test (the tube has an inflatable cuff that expands to provide a seal) they…

Praying for a good day today, they will be turning off her sedative this morning and switching to CPAP mode for spontaneous breathing test. If that works they will make…

Well so far so snafu, Phoebe is sedated but not heavily so she is responsive, the problem is communicating. Currently she is too weak to write and I am not…

Not even sure what happened to day 16, it was a blur and rollercoaster. They were able to extubate Phoebe in the morning; unfortunately she is still struggling with delirium…