Merry Christmas and Happy Holidays
We here at wtfery.org pray that everyone's holiday is filled with joy and peace. There is enough pain and suffering in this world that we pray for everyone, we celebrate…
Day 39
Today was a very hard day, Phoebe is in a lot of pain in her lower back where she has scoliosis and has been experiencing muscle spasms. Part of the…
Day 38
Today has been very rough, Phoebe is going through withdrawals from the fentanyl they had her on in ICU because we needed another problem to deal with right now. But…
Day 36
Well today is the day we leave ICU behind us and head to Rehabilitation Hospital. Phoebe is ready to move and getting anxious to get out of ICU. Currently we…
Day 35
Phoebe is doing very well today. A little frustrated about still being in ICU but in good spirits nonetheless, talking is coming along very well though throat is still sore.…
Day 28
Great news, she slept all night on the T piece did not have to get changed back to ventilator on CPAP mode. She was cutting up with the nurse and…
Day 26
Phoebe is wide awake and doing much better, frustrated with my inability to read lips. On CPAP mode on ventilator now so, basically breathing on her own without oxygen, is…
Day 25
Who knows what today will bring, too many questions remain and I have to figure out what options work with our health insurance. I spoke with Phoebe's nurse and she…
Day 24
Around midnight Phoebe managed to pull off one of her mittens and extubated herself. When she was given the option of BPAP machine or reintubation she agreed to the intubation.…
Day 23
Phoebe is resting well, on sedation so she can not pull the tubes out. She will be having surgery tomorrow for a Tracheotomy and a feeding tube to her stomach…